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Coastal Palliative Care

Supportive care, Palliative care and Hospice services for Coastal

 

Some facts about artificial nutrition and hydration

 What is artificial nutrition and hydration?Artificial nutrition and hydration is a form of life-sustaining treatment. It is a chemically balanced mix of nutrients and fluids, provided by placing a tube directly into the stomach, the intestine or a vein.

 

Is artificial nutrition and hydration different from ordinary eating and drinking? An obvious difference is that providing artificial nutrition and hydration requires technical skill. Artificial nutrition and hydration does not offer the sensory rewards and comfort that come from the taste and texture of food and liquids, and the social interaction that often accompanies eating and drinking is not present.

 

Will the withdrawal of artificial nutrition and hydration lead to a long and painful death? For patients who are at the end of life, death normally occurs within 3 to 14 days after artificial nutrition and hydration is stopped (the time varies depending on how debilitated the patient was when treatment was discontinued). Reports based on the observation of unconscious patients indicate that the process is quite peaceful, and no evidence exists that they are aware of the process. Conscious patients who are elderly or neurologically impaired usually will slip quickly into a coma (a sleep-like state that is inherently free of pain) and become similarly unaware.

Caregivers of the dying and patients themselves have reported that those who are near death are seldom hungry, and if feelings of hunger occur, small amounts of food by mouth are usually all the patient wants.
The most common complaint is dry mouth, a condition that can be alleviated by sips of water, ice chips, lubricants for the lips or other appropriate oral care.
On rare occasions, patients may experience twitching or muscle spasms when hydration is withdrawn, but these symptoms can be managed easily with sedatives.
Symptoms that sometimes occur, such as sever pain or nausea, are due to the disease itself. Supplying artificial nutrition and hydration will not alleviate these symptoms and may even make them worse.

 

Is there evidence that avoiding artificial nutrition and hydration contributes to a more comfortable death? –  Yes. Much of this evidence is based on observations by those who have had a great deal of experience caring for the dying, such as hospice workers. They have noticed that patients who are not tube fed seem more comfortable than those who are. Caregivers also have observed that symptoms such as nausea, vomiting, abdominal pain, incontinence, congestion, shortness of breath, among others, decreased when artificial nutrition and hydration were discontinued making the patient more comfortable.
For example, patients with pneumonia, one of the most common terminal events among the elderly or people with terminal illness, will not suffer as much from coughing or shortness of breath due to the excess mucous production if they are not receiving fluids.

Reports from conscious dying patients indicate that they increasingly experience a lack of appetite and thirst. In fact, it is common for competent hospice patients and those suffering acute illness to refuse food and water. Dry mouth is the only common reported symptoms, and this can be managed without resort to tubes.
Animal studies indicate that the body responds to lack of food by increasing the production of natural pain relievers (endorphins). However, if food is supplied, the body stops producing endorphins and the benefit of this natural pain relief is lost.

Artificial nutrition and hydration is largely a 20th century technology. Historically, coma was nature’ s way of relieving the suffering of the dying. However, the provision of artificial nutrition and hydration may prevent the development of this natural anesthesia in some cases.

 

Is it ever appropriate to give artificial nutrition and hydration to patients who are at the end of life?Yes. As with any medical treatment, tube feeding and hydration should be given if they contribute to the overall treatment goals for the patient. These treatment goals should always focus on the patients wishes and interests. If the goal is to keep the patient alive, then artificial nutrition and hydration may be essential treatment. But if the goal is to provide comfort care only, artificial nutrition and hydration usually is not appropriate and may actually add to the persons discomfort.

 Some individuals from personal or religious conviction may believe that nutrition and fluids always must be given no matter what the condition or prognosis, or how much the patient may be suffering. Because the provision of food and water can have enormous symbolic significance for some, it can have a powerful effect on decisions about the provision of artificial nutrition and hydration. If the symbolic importance exists for the patient, caregivers should respect the patients wishes to continue treatment. However, if the symbolic importance exists for the family and caregivers, but not necessarily for the patient, the decision to continue artificial nutrition and hydration may need closer examination.